Colrectal Stage 3 cancer.

Tred_sl said:

Yes you'll most likely lose your hair. My first round of chemo back in 1996 I'd freak the fuck out of friends by literally yanking out clumps of hair off my head. Fucked up thing to do but it helped me cope by being able to laugh about it. When I had my chemo bout 6 years ago I just went ahead and shaved my head ahead of time. Don't worry it does grow back quickly once you're done with chemo.
About being cool with the stoma and what not. It just takes time. It's a huge change/transition. It may seem insurmountably overwhelming at first but just take one day at a time and be patient with yourself.

Click to expand...

Yah I shaved my entire head last night, my hair has been falling out.
So I just decided to get ahead of this so now for the 1st time in my life, I am completely bald.

As far as my future stoma goes, I am trying to get used to the fact that there is no choice that I am getting one no matter what in Dec 2013.
I know I will come around to the stoma idea, it just stressing me and don't even have it yet.
The worst part is when I get my colon surgery as well as all the lymph nodes taken that, I will still not be cancer free.
After the colon surgery and the stoma, followed by 4-6 weeks of rest to heal, then its more chemo, rad treatments then sometime around July to August 2014 only then might I hear the magic words of cancer is in remission.
That is the what is bugging me the most, not so much the loseing all of my hair or the future stoma but the fact that nothing is certain with cancer, I can do all this and die at the age of 36 years old anyway.
I lost my Aunt and 1 Cousin and my other Uncle all to colon cancer so it does run in the family.

Normally Tidster is always positive, but I wont lie, this all did overwhelm me.
One of our favorite time of the year is Halloween and xmas for my fianc? as well as myself but having the surgery happen either xmas week or week after, is going to to be hard on us both.
Like I said I had just got Promoted at my career, we were getting married next year, sometime in 2014 she wanted to start having children so to say all this has thrown a monkey wrench in all our plans would be understatement.
We Both game and were looking forward to the new PS4 and Xboxone even though we pc game always 1st.

Sadly this may sound stupid, since I am now having to stay home while on medical leave when not heading to the hospital for the daily chemo treatments, radation there is not much on cable tv to keep my mind off the cancer, same with new books to buy, or movies coming out, as well as any new MMO worth a dam, EQNext is atleast 2 years away but atleast 5-9 months away from early alpha version.
I am subbed to like 10-15 AAA MMO's from lifetime subs to 1 year subs to soe all access but I really cant play any of them for a period of time due to being so sick, cant sit that long that area is really sore so this is not a option.
fatigue is thru the roof, only thing that will help is when some the few fall tv shows come out to watch as well, as NFL,NHL and college football starts cause I can watch stuff the easiest while do all my daily treatments, can lie down to watch them, so again if it keeps my mind of the cancer thing, I am powerless to do anything about but just wait and pray.

supertouch_sl said:

No, I'm not trolling. He's known for constructing these fantasies to get attention.

Click to expand...

What is funny about getting a stoma for the rest of your life please tell me?
Even when you get a stoma what is funny about not knowing if you will live or die from the cancer being powerless?
If you had any fucking clue what ulcerative coltis is you would not find it funny, its embrassing at times let alone when it is to the stage it is now, what is funny about rectal bleeding and diareha please do tell me?

I have had Ulcertive coltis since I was 20 years old, which makes me high risk for colon cancer. I was on remicade infusion therapy every 4 weeks since I was 20 years old they have to heart monitor you for this it takes 3 hours every month for the last 15 years had to get in the IV.
My aunt Joan had Diverticulitis and she had colon cancer 3 times and the 3rd time killed her.
My uncle Bob had Crohns disease and died from colon cancer on his 2nd time.
My aunt that died from the colon cancer, her oldest daughter Vickie my cousin died as well of colon cancer 4.5 years after her mother my aunt Joan died from colon cancer.

These 3 dieases of the colon make you high risk of colon cancer, I have lost 3 family members to this terrible diease, my older bother has Crohns disease as well.

So I am not sure what you are talking about, I will pray for you.

Thanks

Derek

At the end of my 3rd week of chemo this Friday, I will upload medical documents, Its a Miltary Hospital so they all will have the seal on them.
I live in Wesley Chappel,FL if anyone lives near us, I would welcome a Visit while I do the chemo 5 days week till end of Oct 31,2013.
Then 6-8 weeks of rest, then the full removal of my colon and lymph nodes, and me leaving hospital with my new stoma some time around xmas give or take week.

I am already dreading and looking forward to the moment , cause then after more rest it could be my final chemo round , If I beat it, However bluntly if that batch of chemo don't beat it, then stuff could go south rather quickly.

Thank you
Derek Alexander

This is going to be my Col rectal surgeon doing my surgery at the military hospital in the city.
Lisa J Moudgill, MD Tampa,FL at James Haley VA hospital in Tampa,FL.

Does anyone know a good site, that I can look up more about her, where she went to Medical School got her Fellowship etc?

Cheers.

I forgot 3 the pages for my chemo schedule will upload later.

Kuriin_sl said:

Yeah, I really don't think it was even necessary, Tidbit. You have nothing to prove and if you wanted to lie about having cancer, that's all on you. But, it's not like it's going to cause us grief, lol.

Did you ever get any other anti-emetics? Did you try Reglan?

Click to expand...

I am going to ask my Oncology Doctors Friday about other anti-emetics or reglan.

Thank you.

Duppin_sl said:

Don't post your personal info because of supertouch, sir. He's staggeringly retarded, and I say that as someone who defended him versus Tarrant once. It was hard to pick a particular cripple to back in that cripple fight, believe you me.

Click to expand...

I whited out my social security on them all.
I appreciate it, I am trying to stay positive so can fight the cancer better. I posted it for the inmature Imbeciles that come in this thread, like my cancer is some sick joke.
As I posted I have lost 3 members of my family to colon cancer, I find no humor in any of it.
I am normally always positive, happy but as others have warned me in this thread that have been thru cancer, my days seem to cycle now as far as my mood goes due to this the cancer side effects as well as stress from it all.

They are having me do something called a pet scan next week, I was told so they can check on the cancer areas to make sure the chemo,radiation treatments are working.
So between that and my this Friday seeing the doctors again before treatment they have told me they are more then likely going to change my chemo/rad treatment schedule.
So once I get the new schedule that will have my daily chemo treatments will upload it.
I thought about uploading my med list they have me on now, so those on the boards with medical knowledge as well as having experience with cancer can tell me which are good, and which are bad.

All VA hospitals keep tons of paperwork and that is without even having to go to ROI at the VA to get your medical documents etc.
The irony in all this, while I am on medical leave from my work so can fight the cancer as well as the cancer surgery.
I have a BVA appeal claim that is sitting with a BVA judge now for 9 months now, but the actual appeal is almost 8 years old to go from 90-100% service connected for my ulcertive coltis and dysplasia.
So if I can beat the cancer, not only could I resume working at my career but I about to get massive backpay for the difference from 90-100% service connected.
My BVA appeal claim for ulcerative coltis and dysplasia increase was already a slam dunk for overwhelming evidence that they have gotten way worse.
The BVA is trying to expedite it due to the life threatening cancer as well as using that as further evidence for my BVA claim.
However anyone that knows the VA let alone the BVA knows they are massively backed logged, so if I die due to the cancer or side effect of the cancer before they send me my new upgraded award letter from 90% to 100% service connected then my GF whom I was marrying next year wont get anything from the VA money wise.

Echuta_sl said:

I'm within 2 hours from you. I can probably make it out there sometime in the future with enough planning ahead of time. Let me know what you need. We can hang out, play cards, watch sports, debate Xbox one vs PS4. Hell, I'll smuggle in some porn DVDs if it helps. Stay strong, man. Let me know.

Click to expand...

Will do, kewl man.My daily chemo is around 4 hours with the rad treatments as well its super boring and stressful to me.
Its stressful to me, cause I am so bored there while they do the daily chemo that I just sit, lie down etc thinking over and over about my cancer due to not much there to do.
I have Netflix Hula etc but its a Miltary Hospital so no military hospitals cant get wireless so I cant do anything on my laptop stream, read stuff, watch movies.
If my laptop or Ipad or kindle coule get wireless there I would have hell of a lot stuff to do, could even play some the many MMO's have 1 year subs to as well as lifetime subs.
Since I am on medical leave, my gf is trying to save her personal days as well as vacation days for when I get sicker pre surgery and after for maybe the last set of chemo spring next year 2014,

We will have College football, NFL, NHL as well soon so between that and fall tv shows coming back there will be a lot more to do.
If amazon does not mess it up, I should have ps4 as soon they come out on Nov 15, I am getting xbone as well as soon they come out.
But all VA hospitals don't have wireless , opposed to regular hospitals, and I cant get my personal wireless internets to come in worth a shit there.


1 last thing since I am rather young, my daily chemo treatments are at the VA here, and most of the other patients are 50-70+ years old etc, so there is not much in common with them all due to the huge age gap.
My gf like I said came to my 1st week and couple days in 2nd week, so it was not as bad with her there, I was not as stressed and bored as well.
But I asked her to save rest of her personal days, and vacation for when I have surgery, as well as if my cancer goes south early next year or for my last weeks of chemo after surgery.
Let me get thru the next week of chemo and I let you know.
Thanks mate.