Health Problems

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moonarchia

moonarchia

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Borzak said:
I've had umpteen diagnosis. Some plausable, kind of. Some go against modern medicine.

The MS specialist at the MS clinic "You have a few lesions would else could it be?" Literally said that. Dumbass me can look at the Mayo clinic website and see numerous other things that cause rit. Then she said "all the things you complain about have nothing to do with MS. How she says both of those things and doesn't get the connection is beyond me. Over and over to every Dr. I see I mention how much all the stuff revolves around my skin. The fact Lupus can cause brain lesions is news to them apparently. It's a giant you scratch my back and I'll scratch yours deal. Even with the best insurance I could buy at any price they require you to get a referall from a nurse pracicioner first and you mention some of the stuff and they look at you like you have three heads.

It's beyond clear now it's Lupus. 3 minutes in the sun today brings me to my knees and hours later the pain is overwhelming. SPF 50 from now on for a 30 second walk outside.

The medical community incompetence is real. I ordered a T- shirt giving some stats like rank of malpractice insurance and other stuff. I don't care. I may wind up in prison or jail. Probably get better healthcare.

The best diagnosis
Massive brain damage
You will never walk again
In two years you will need to be tied down to a wheelchair to keep from falling out.

ADEM - which is related to MS and only occurs in children and the identifying characteristic is the MRI is termed a thite completely full of lesions. I had 4 small ones.

MS from a Dr. that it was news you could have something other than MS cause lesions. Of course she also said she's not there to see or diagnose patients but she did. She's there to review and run drug test. She picked the wrong redneck to tell me how difficult stressful it was to look at numbers all day. Money is got in her posistion giving blow jobs. This is not just me, another two doctors told me she was known as a big party preson till her current job. Maybe she is better at giving blow jobs thoughs he does suck at her current job.


I've moved onto the next chapter. Tell them how incompetent I think they are. As a patient you really can't tell how good a Dr. is when you first see them. In the case of the MS specialist there are only two in the state and the other is there to treat depenents of the Air Force personsal since their other baser they fly from is in ND and apparently MS is related to low vitamin D.

But they all make sure to show you what school they got a degree from. Apparently the slide has been going on for longer than just recently.

The MS specialist and the ADEM neurologist both graduated from Harvard. They really DO NOT like it when you say the best jobs in the petrochemical industry are in LA and TX. Thest best medical jobs not so much for a few exceptions.

In school LA was often referecd to as thank God for MS or LA would be last in everything. I recently saw LA is ranked last now. I believe it, the Doctors don't even realise they are so used to seeing mostly the bottom of the barrel so they adjust to it.

It's not just LA but TX as well in some ways. Once a hospital group has your diagnosis on record that's it. No docotor or nurse practicioner will do a fucking thing to investigate or treat other symptoms. I said many times I could show up at the ER with half an arm missing and the Dr. would say "common with whatever diagnosis they pick off the list. Speaking of ER. The closest I ever come to actually killing someone. The pain was so bad I went to the ER. Back when you actually saw a doctor and not a nurse. I told him I had been diagnosed with ADEM which there is no way. That was that. He went to security and had me removed from the building sand told me to quit wasting their time.

I'm done be Mr. nice guy. That ends now.
Yes I have a couple of attorneys on it already but it was like I had a fuck me shirt on all the time. I have tshirts coming soon and I'll make sure to wear it every time I go to the Dr. or hospital and point out a few stats for their ejoyment.

What do I have to loose? Might get better medical care in prison. Maybe.

Rant over. This week I'll either end up dead or in prison. OH well either is an improvement.
Just to be clear it's been 4 different states so far. LA, TX, AZ, and FL at the mayo clinic which it is very hard to find someone there that their primary language is english and AZ.
Click to expand...
If you seriously think it's lupus then try finding a specialist to get their opinion?

Lupus Clinic | Rheumatology

The UCSF Lupus Clinic focuses on the evaluation and management of Systemic Lupus Erythematosus, with a particular emphasis on moderate to severe forms of the disease. Clinic providers have expertise in treating refractory, difficult to treat manifestations including lupus nephritis and severe...
rheumatology.ucsf.edu rheumatology.ucsf.edu
 
Goatface

Goatface

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colonoscopy went well yesterday, they found some polyps but dr said they didn't look like anything bad. don't know if this ends looking into why failed the stool test back in feb or not, go back to pcp later this month.

some random stuff about the colonoscopy process, only posting in case someone else going to have one done.

had to do 3 days of a basically super low fiber diet (less than 1% per serving), with no fruits, veggies, beans, nuts. while looking online found many other places allowed stuff like skinned veggies and nut butters. wish i had asked more question about diet at the start. for me the cleanse wasn't that bad. 8am 4 pill laxatives then mix 14 doses of laxative powder with 64 oz of gatorade. chill and wait 2 hours then drink 8 oz every 15 mins. i put the the jug in a bowl of ice on my desk so could just pound it without having to the fridge. i never got the urgent runs. got bloated and found laying down would inspire a movement. think i ended up drinking a gallon of water and eating a few lemon popcicles. i should have forced myself to start drinking water sooner. while talking to the prep people at the hospital, it became clear they had no idea what diet or cleanse i did. it got me worried as 2 people asked if i had did my 2 days of clear fluids. the dr just asked if i had completed the cleanse.

the worse part of the whole deal, they put the iv into back of my hand. it is so you can lay your side and have your hand on the bed so it won't kink. first they gave me iv lidocaine then fentanyl-propofol (anesthesia drug). she said lidocaine was because the other drugs burn when going in. i was out in seconds and woke up feeling great. only took a couple of mins to be up walking around which was bad, was supposed to be on my left side to help to pass gas. ended up getting a sharp pain in my side til the nurse came in and told me to lay back down as can not leave until start passing gas.

went in a 6:30am and in private room at 6:45. the dr was doing at least 5 other colonoscopies in the 6:30 time slot. they started doing prep around 7:15 and took me to procedure room around 7:45 and was done just after 8.
 
moonarchia

moonarchia

The Scientific Shitlord
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42,639
Goatface said:
colonoscopy went well yesterday, they found some polyps but dr said they didn't look like anything bad. don't know if this ends looking into why failed the stool test back in feb or not, go back to pcp later this month.

some random stuff about the colonoscopy process, only posting in case someone else going to have one done.

had to do 3 days of a basically super low fiber diet (less than 1% per serving), with no fruits, veggies, beans, nuts. while looking online found many other places allowed stuff like skinned veggies and nut butters. wish i had asked more question about diet at the start. for me the cleanse wasn't that bad. 8am 4 pill laxatives then mix 14 doses of laxative powder with 64 oz of gatorade. chill and wait 2 hours then drink 8 oz every 15 mins. i put the the jug in a bowl of ice on my desk so could just pound it without having to the fridge. i never got the urgent runs. got bloated and found laying down would inspire a movement. think i ended up drinking a gallon of water and eating a few lemon popcicles. i should have forced myself to start drinking water sooner. while talking to the prep people at the hospital, it became clear they had no idea what diet or cleanse i did. it got me worried as 2 people asked if i had did my 2 days of clear fluids. the dr just asked if i had completed the cleanse.

the worse part of the whole deal, they put the iv into back of my hand. it is so you can lay your side and have your hand on the bed so it won't kink. first they gave me iv lidocaine then fentanyl-propofol (anesthesia drug). she said lidocaine was because the other drugs burn when going in. i was out in seconds and woke up feeling great. only took a couple of mins to be up walking around which was bad, was supposed to be on my left side to help to pass gas. ended up getting a sharp pain in my side til the nurse came in and told me to lay back down as can not leave until start passing gas.

went in a 6:30am and in private room at 6:45. the dr was doing at least 5 other colonoscopies in the 6:30 time slot. they started doing prep around 7:15 and took me to procedure room around 7:45 and was done just after 8.
Click to expand...
I got a list of what to eat/avoid on the days leading up to mine. And some god awful tasting drink I had to take the day before. No lidocaine, they just went in with the mildly burny stuff and I woke up an hour later.
 
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Prodigal

Prodigal

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moonarchia said:
I got a list of what to eat/avoid on the days leading up to mine. And some god awful tasting drink I had to take the day before. No lidocaine, they just went in with the mildly burny stuff and I woke up an hour later.
Click to expand...

Pretty much the same for mine - stay away from several things a few days before, no red/purple dye in drinks/food, only water/jello/broth the day before. The prep from the pharmacy was two bottles of what tasted like watery cough syrup that you mixed with more water and had to drink. Stuff worked though - I realized what they meant when they said I’d be “running clear” in the morning.
 
moonarchia

moonarchia

The Scientific Shitlord
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Prodigal said:
Pretty much the same for mine - stay away from several things a few days before, no red/purple dye in drinks/food, only water/jello/broth the day before. The prep from the pharmacy was two bottles of what tasted like watery cough syrup that you mixed with more water and had to drink. Stuff worked though - I realized what they meant when they said I’d be “running clear” in the morning.
Click to expand...
A veritable Irish spring from the anus.
 
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Kajiimagi

Kajiimagi

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I had to have my annual done during high-COVID. Treated like lepers , had to wait in the car till called. Rush in get poked, rush out. I did the 12 / 12 capsules with water. Had to pay for them extra but it was $40 well spent not to have to drink all that shit.

Glad it worked out well for you Goatface Goatface
 
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Gavinmad

Gavinmad

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Your first ass cam prep is always the worst. I wouldn't exactly call the second time pleasant but it really was just mildly annoying compared to how awful I felt the first time.

Two cans of beef consomme was like magic. Still counted as a clear liquid according to the prep guide they gave me and it's just about the only savory thing on the list, everything else is sweet. Loading up on sugar the first time probably contributed to making things feel awful but the consomme made me feel like I'd had a normal meal.
 
C

Captain Suave

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I had one in November and it fucked up my gut flora for a solid two months (cramps with every meal, whee!) before I started taking nightly probiotics. The research isn't clear that they actually do anything, but it sure seemed to help me.
 
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ToeMissile

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Captain Suave said:
I had one in November and it fucked up my gut flora for a solid two months (cramps with every meal, whee!) before I started taking nightly probiotics. The research isn't clear that they actually do anything, but it sure seemed to help me.
Click to expand...
What I recall seeing is that the regular stuff available doesn't have enough of the bacteria or it's not enough to effect permanent change, something like that. Maybe with enough consistency and for long enough. It'll depend on what else you're eating too; lot's and a variety of veggies and food with live cultures.
 
C

Captain Suave

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ToeMissile said:
What I recall seeing is that the regular stuff available doesn't have enough of the bacteria or it's not enough to effect permanent change, something like that. Maybe with enough consistency and for long enough. It'll depend on what else you're eating too; lot's and a variety of veggies and food with live cultures.
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It's entirely possible that it was placebo. I was having so little fun that I spent a week eating yogurt, kimchi, miso, kombucha, all that shit, combined with the pills. Within a few days I felt tons better, but there's nothing scientific I can point to definitively.
 
ToeMissile

ToeMissile

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Captain Suave said:
It's entirely possible that it was placebo. I was having so little fun that I spent a week eating yogurt, kimchi, miso, kombucha, all that shit, combined with the pills. Within a few days I felt tons better, but there's nothing scientific I can point to definitively.
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We pretty much always have kimchi and yogurt around. I also have fiber in my daily supplements. Knowledge of GI health still has a long way to go, some of the podcast eps I've seen on the topic have been interesting as hell.
 
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Gurgeh

Gurgeh

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I've used probiotic vsl3 twice, once after a colonoscopy and once after my yearlyish food intoxication, it's surprisingly good. But certainly not something I'd used in normal situations (2/3 fermented food do the trick).
 
fris

fris

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Bananas best way to rebuild your gut fana. Crap food will cause bad bacteria to reproduce faster. Best food for gut health. Better if they're more green than brown
 
ToeMissile

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fris said:
Bananas best way to rebuild your gut fana. Crap food will cause bad bacteria to reproduce faster. Best food for gut health. Better if they're more green than brown
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I can’t speak to bananas specifically, but I know a variety is import.
 
Daidraco

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ToeMissile said:
I can’t speak to bananas specifically, but I know a variety is import.
Click to expand...
Theyre really good for you. I eat a couple a day, along with a couple granny smith apples (favorite, not really specific). Between the natural sugars, the good carbs, potassium, fiber, all that - excellent value for your gut health. Never mind the boost of energy you get from the natural sugars, without the crash that other sugars give you. (if you dont eat sweets, that is.)
 
Goatface

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sorta of an update from last month, finally got to see my pcp and ask about my calcium level that popped up on blood work for colonoscopy. wasn't going to post about it yet, but had the tests done on Tuesday and they still have not called me and don't know if they are in on Fridays.

what i gather the high PTH instact can be from thyroid issues. calcium went down from 12.6. Vit D is up from 10 in jan. been talking a weekly 1.25mg D2 pill.

1714090963336.png


funny thing, test results post to the medical app as they are completed and before staff gets to look at them. after you look at the results there is a warning about not understanding the results can be upsetting and lead to stress.
 
Gurgeh

Gurgeh

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Goatface said:
sorta of an update from last month, finally got to see my pcp and ask about my calcium level that popped up on blood work for colonoscopy. wasn't going to post about it yet, but had the tests done on Tuesday and they still have not called me and don't know if they are in on Fridays.

what i gather the high PTH instact can be from thyroid issues. calcium went down from 12.6. Vit D is up from 10 in jan. been talking a weekly 1.25mg D2 pill.

View attachment 526338

funny thing, test results post to the medical app as they are completed and before staff gets to look at them. after you look at the results there is a warning about not understanding the results can be upsetting and lead to stress.
Click to expand...
Goatface said:
sorta of an update from last month, finally got to see my pcp and ask about my calcium level that popped up on blood work for colonoscopy. wasn't going to post about it yet, but had the tests done on Tuesday and they still have not called me and don't know if they are in on Fridays.

what i gather the high PTH instact can be from thyroid issues. calcium went down from 12.6. Vit D is up from 10 in jan. been talking a weekly 1.25mg D2 pill.

View attachment 526338

funny thing, test results post to the medical app as they are completed and before staff gets to look at them. after you look at the results there is a warning about not understanding the results can be upsetting and lead to stress.
Click to expand...
It's not really that high, and it could make sense that as you normalize vit D, blood calcium normalize as well, as vitD is needed for calcium absorption.
1.25 mg of vit D is a serious dose, but it will take months regardless to really normalize, you might end up overshooting at that level, might be a good Idea to check level every couple of months.
Also,.at that dose it might be prudent to add k2 vitamin, especialy with an anomaly in calcium level. K2 is entirely harmless, and a lot of vitD supplement just include it now.

Isn't PTH just another consequence of low vit D? Especialy a level that's just high and not really pathologicoly high? Thyroid disfunction with really low vitD isn't unheard off.

Also it's spring, you can speed up normalizing vit D level by going in the sun, as well as eating sardine or good quality eggs. Absorption through natural means is often faster.
 
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sleevedraw

sleevedraw

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Goatface said:
sorta of an update from last month, finally got to see my pcp and ask about my calcium level that popped up on blood work for colonoscopy. wasn't going to post about it yet, but had the tests done on Tuesday and they still have not called me and don't know if they are in on Fridays.

what i gather the high PTH instact can be from thyroid issues. calcium went down from 12.6. Vit D is up from 10 in jan. been talking a weekly 1.25mg D2 pill.

View attachment 526338
Click to expand...
Goatface said:
funny thing, test results post to the medical app as they are completed and before staff gets to look at them. after you look at the results there is a warning about not understanding the results can be upsetting and lead to stress.
Click to expand...

High PTH could theoretically be from a thyroid issue, yeah, but if that was the case, your TSH would likely be low (low TSH = overactive thyroid; their relationship is inverse), and yours is still within normal range. Based on what I'm seeing, per Occam's Razor, still looks like hyperparathyroidism. Probably primary, but your vitamin D levels are a little low, so it could maybe be secondary as a result of nutritional deficiency. The ideal number for D in lab work is contentious -some people say as low as 20 ng/mL, some people say as high as 100. Looks like your lab sets their reference range on the higher side.

If you want to supplement orally:
1) take D3 instead of D2; it's more bioactive.
2) from a pharmacology standpoint, it's also better to take lower doses more often so that you get a more stable plasma concentration (in other words, small dose daily instead of big dose weekly), and
3) take vitamin D with some form of fat to improve absorption, because it is a fat-soluble vitamin.

Echoing Gurgeh Gurgeh , some sun exposure may be helpful (you don't need much, only about 15 minutes a day), and be careful about overshoot. Doing a redraw every 2-3 months until you're at a good, stable level in the 30s-40s is probably a good idea. It is very difficult to acutely poison yourself with vitamin D, but there is some research that suggests it can have subtle negative effects at very high doses. I may have mentioned this before, but if you don't want to go to a lab, CVS has fingerstick VitD tests that they sell for about $20 that you can mail in. Probably a bit less accurate than an actual draw, but if you're just doing it for periodic titration of a vitamin over a relatively long timepoint, probably fine.
 
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Gurgeh

Gurgeh

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Normal vit D level is around 70, as per studies on savage tribes. 40 is decent but most certainly suboptimal. A lot of studies show benefits above 40. When you think about it, 15 minutes of sun cannot be optimal considering how much time our ancestors spent outside. 15 minutes is enough so that you don't end up in ICU when you catch covid or the flu, but that's it.
 
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ToeMissile

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Gurgeh said:
Normal vit D level is around 70, as per studies on savage tribes. 40 is decent but most certainly suboptimal. A lot of studies show benefits above 40. When you think about it, 15 minutes of sun cannot be optimal considering how much time our ancestors spent outside. 15 minutes is enough so that you don't end up in ICU when you catch covid or the flu, but that's it.
Click to expand...
Remember to build up to more time so you don’t burn. Also, so many other positive effects of getting time outdoors.
 
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