Health Problems

Denamian

Denamian

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I'm in the healthcare (on the non clinical side), so I know that some specialties are their own worlds. We even have a couple radiation oncology clients. The ENT in question was the co surgeon along with the neurosurgeon and these kind of tumors are something he specializes in. I would think he would know enough to not say shit like that to a patient without being sure about it. Then again, ever since I started dealing with providers on a regular basis at work, I no longer put them on a pedestal like I used to. Plus I'm hearing this all second hand, but my sister is usually very good at keeping the facts straight. Hopefully the treatment is exactly what he needed. We will have to wait and see.

I'm mainly just venting because I'm frustrated with not being able to enjoy a few beers with him at hockey games as the season came to an end. Beer is one of the things that now tastes like shit to him and he rarely has the energy to handle leaving the house for long.
 
Izo

Izo

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Mmm, wine, beer and coffee tastes different. Could try ice tea, cold drinks, ginger etc. Food is a whole difrent category. Fucked up olfactory senses after chemo/radiation is a well known side effect, sadly.
 
Guurn

Guurn

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Denamian said:
I'm in the healthcare (on the non clinical side), so I know that some specialties are their own worlds. We even have a couple radiation oncology clients. The ENT in question was the co surgeon along with the neurosurgeon and these kind of tumors are something he specializes in. I would think he would know enough to not say shit like that to a patient without being sure about it. Then again, ever since I started dealing with providers on a regular basis at work, I no longer put them on a pedestal like I used to. Plus I'm hearing this all second hand, but my sister is usually very good at keeping the facts straight. Hopefully the treatment is exactly what he needed. We will have to wait and see.

I'm mainly just venting because I'm frustrated with not being able to enjoy a few beers with him at hockey games as the season came to an end. Beer is one of the things that now tastes like shit to him and he rarely has the energy to handle leaving the house for long.
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I used to plan the treatments for this type of thing. I'd work with the neurosurgeon to delineate the area to be targeted and once they were done is come up with a plan, oked by the Radiation Oncologist, that gave the intended dose and avoided what needed avoiding. Everyone felt comfortable telling the Radiation Oncologist what to give but honestly they had no clue. I think they just wanted to sound expert for their patients. Physicians do have egos, some more than others of course. That doesn't mean they aren't correct and too much was given, but it's unlikely. All of the dosing is pretty well established at this point, especially regarding what is safe for the surrounding tissue. Insert standard disclaimer here
 
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Kithani

Kithani

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Denamian said:
I'm in the healthcare (on the non clinical side), so I know that some specialties are their own worlds. We even have a couple radiation oncology clients. The ENT in question was the co surgeon along with the neurosurgeon and these kind of tumors are something he specializes in. I would think he would know enough to not say shit like that to a patient without being sure about it. Then again, ever since I started dealing with providers on a regular basis at work, I no longer put them on a pedestal like I used to. Plus I'm hearing this all second hand, but my sister is usually very good at keeping the facts straight. Hopefully the treatment is exactly what he needed. We will have to wait and see.

I'm mainly just venting because I'm frustrated with not being able to enjoy a few beers with him at hockey games as the season came to an end. Beer is one of the things that now tastes like shit to him and he rarely has the energy to handle leaving the house for long.
Click to expand...
I totally hear where you’re coming from, it’s just hard to underemphasize just how niche/different Rad Onc is from basically any other field and other docs really get zero training or even pre-clinical lectures about it. This would be like if your car mechanic told you that your plumber used the wrong pipes or something. It would be laughable if it wasn’t for the fact that it is clearly causing your BIL/family some level of distress which makes it infuriating IMO.

I would suggest that at their next Rad Onc appt they bring it up directly with the doctor (NOT his or her office staff who may be just as clueless) in a CALM, non-confrontational way and see what they say.

Ophthalmology may be the only thing that comes close in the “other docs have no idea what they’re doing” department but that’s only because they write their notes in Wingdings and not because the actual science is foreign to them.
 
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Captain Suave

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Guurn said:
I used to plan the treatments for this type of thing. I'd work with the neurosurgeon to delineate the area to be targeted and once they were done is come up with a plan, oked by the Radiation Oncologist, that gave the intended dose and avoided what needed avoiding. Everyone felt comfortable telling the Radiation Oncologist what to give but honestly they had no clue. I think they just wanted to sound expert for their patients. Physicians do have egos, some more than others of course. That doesn't mean they aren't correct and too much was given, but it's unlikely. All of the dosing is pretty well established at this point, especially regarding what is safe for the surrounding tissue. Insert standard disclaimer here
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Dosimetrist? My wife spent 5 years as a medical physicist. I'll third that radiation oncology is a significantly siloed practice, even from other specialist doctors working on the same tumors on the same patient. There's also a lot of art and differing risk tolerances in treatment design, which can result in substantially different treatment protocols between doctors, and changes in plans based on last-minute information.

tldr; Don't freak out until talking with the doctor from whom the plan originated.
 
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sleevedraw

sleevedraw

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Kithani said:
I totally hear where you’re coming from, it’s just hard to underemphasize just how niche/different Rad Onc is from basically any other field and other docs really get zero training or even pre-clinical lectures about it. This would be like if your car mechanic told you that your plumber used the wrong pipes or something. It would be laughable if it wasn’t for the fact that it is clearly causing your BIL/family some level of distress which makes it infuriating IMO.

I would suggest that at their next Rad Onc appt they bring it up directly with the doctor (NOT his or her office staff who may be just as clueless) in a CALM, non-confrontational way and see what they say.

Ophthalmology may be the only thing that comes close in the “other docs have no idea what they’re doing” department but that’s only because they write their notes in Wingdings and not because the actual science is foreign to them.
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Not just Wingdings. Hand-written Wingdings. Literally every time I get a cataract surgery prior auth request:


senor chang GIF
 
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Tmac

Tmac

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Anyone ever bitten by a brown recluse?

I got bit this week. Day five and my whole body is one giant rash and the swelling/pain around the bite hasn’t really subsided.

I’m starting to worry this may be one of the bad ones I’ve read about that lasts weeks rather than days.

Feelsbadman.jpg
 
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ToeMissile

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Tmac said:
Anyone ever bitten by a brown recluse?

I got bit this week. Day five and my whole body is one giant rash and the swelling/pain around the bite hasn’t really subsided.

I’m starting to worry this may be one of the bad ones I’ve read about that lasts weeks rather than days.

Feelsbadman.jpg
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Pretty sure someone on the board, maybe a wife?, was bitten on the leg. I don't recall mention of whole body rash, just them documenting the long healing process of the wound.
 
Captain Suave

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Tmac said:
Day five and my whole body is one giant rash and the swelling/pain around the bite hasn’t really subsided.
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Dude. Fucking doctor ASAP. Systemic rash is a possible sign of large-scale death of your red blood cells. Tissue necrosis is no fun. My dad was bitten as a kid, was on IV antibiotics for days and needed surgery, has a chunk out of his thigh that looks like someone took an melon scoop to it.
 
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Koushirou

Koushirou

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Tmac said:
Anyone ever bitten by a brown recluse?

I got bit this week. Day five and my whole body is one giant rash and the swelling/pain around the bite hasn’t really subsided.

I’m starting to worry this may be one of the bad ones I’ve read about that lasts weeks rather than days.

Feelsbadman.jpg
Click to expand...
I feel like that's definitely one of the bites you're absolutely supposed to go see a doc for, if you haven't yet.
 
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TheBeagle

TheBeagle

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Tmac said:
Anyone ever bitten by a brown recluse?

I got bit this week. Day five and my whole body is one giant rash and the swelling/pain around the bite hasn’t really subsided.

I’m starting to worry this may be one of the bad ones I’ve read about that lasts weeks rather than days.

Feelsbadman.jpg
Click to expand...
Sludig Sludig
 
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sleevedraw

sleevedraw

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Koushirou said:
I feel like that's definitely one of the bites you're absolutely supposed to go see a doc for, if you haven't yet.
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It depends. The toxicity is somewhat overstated, and many recluse bites are self-limiting, but if he's having a body-wide rash, he's having a systemic reaction, and he needs to get checked out.
 
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Sludig

Sludig

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Tmac said:
Anyone ever bitten by a brown recluse?

I got bit this week. Day five and my whole body is one giant rash and the swelling/pain around the bite hasn’t really subsided.

I’m starting to worry this may be one of the bad ones I’ve read about that lasts weeks rather than days.

Feelsbadman.jpg
Click to expand...
Wife was in er and admitted for a few days with blood infection from it, if your not being treated, do so. Was on all kinds of meds, wound melted a big chunk out of her leg etc
 
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Sludig

Sludig

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Tmac said:
Anyone ever bitten by a brown recluse?

I got bit this week. Day five and my whole body is one giant rash and the swelling/pain around the bite hasn’t really subsided.

I’m starting to worry this may be one of the bad ones I’ve read about that lasts weeks rather than days.

Feelsbadman.jpg
Click to expand...
now that search works go find my posts in this thread on it.
 
Tmac

Tmac

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Captain Suave said:
Dude. Fucking doctor ASAP. Systemic rash is a possible sign of large-scale death of your red blood cells. Tissue necrosis is no fun. My dad was bitten as a kid, was on IV antibiotics for days and needed surgery, has a chunk out of his thigh that looks like someone took an melon scoop to it.
Click to expand...

Progression pics:

IMG_7785.jpegIMG_7786.jpegIMG_7792.jpegIMG_7795.jpegIMG_7819.jpeg

Went to the grocery store NP Tuesday and she prescribed me an antibiotic. Went and got a second opinion today and they prescribed me prednisone and a stronger antibiotic.

I’ve also been applying PRID and taking a dose of hydrated bentonite in the morning.
 
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Sludig

Sludig

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Tmac said:
Well that was horrifying. How is she now?
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Fine, but has a saucer sized shallow hole in her leg that's all scar that likes to flake a little, can't feel center but hates if I tickle is as it feels funny. I told her to use it as a ketchup dipping cup on the couch or get a tattoo to make the whole thing look like a zombie bite.

She wasn't amused. I think I've been recluse bit before but was fairly mild. Looks like you were the happy medium between the 2 extremes. One of our dogs got bit a a month ago and also suddenly had this golf ball open wound. Recovered well but also a scar now. Only bad thing about moving out where we did, shop and our house attic, just hundreds of em, about the only spider I see. Spray a few times a year.
 
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