Health Problems

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Woefully Inept

Woefully Inept

Karazhan Raider
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Sorry to hear that Olebass that's a shitty position to be in.
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I'm done with my chemo for the time being. CT Scan 9/18 with the followup the next day. I definitely need the break. The side effects were getting worse with each round. I had to leave work early yesterday because of really bad fatigue and nausea. Some fun shit. Feeling a bit better today. Took it easy and didn't do anything.
 
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a_skeleton_03

<Banned>
29,948
29,763
Tred_sl said:
Sorry to hear that Olebass that's a shitty position to be in.
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I'm done with my chemo for the time being. CT Scan 9/18 with the followup the next day. I definitely need the break. The side effects were getting worse with each round. I had to leave work early yesterday because of really bad fatigue and nausea. Some fun shit. Feeling a bit better today. Took it easy and didn't do anything.
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Good luck on the scan. I am 10 days post first cycle and feeling normal right now. I am about at the halfway point before my next cycle.

Did bloodwork yesterday and my WBC is at a 2 ... basically I am getting dangerously close to needing a mask.
 
Pasteton

Pasteton

Blackwing Lair Raider
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ya you will be prone to viral/fungal infections and keep in mind when youre immunesuppressed your symptoms may not be typical for example you may not spike a fever. Also what is typically mild can quickly become lethal, for example have seen sinusitis in the immune suppressed spread into the brain.

a_skeleton_03/tred do you have the specific path results on your malignancies? Especially for lymphoma, the exact histology is everything with regards to prognosis.
 
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a_skeleton_03

<Banned>
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Pasteton_sl said:
ya you will be prone to viral/fungal infections and keep in mind when youre immunesuppressed your symptoms may not be typical for example you may not spike a fever. Also what is typically mild can quickly become lethal, for example have seen sinusitis in the immune suppressed spread into the brain.

a_skeleton_03/tred do you have the specific path results on your malignancies? Especially for lymphoma, the exact histology is everything with regards to prognosis.
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I do would you like to look at a scan of it?
 
Pasteton

Pasteton

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i dont need to but i do think its underemphasized by patient's doctors sometimes. If you haven't already you should press your oncologist on the biopsy results and what they mean as far as treatment response, chance for recurrence/remission, and likelihood of long-term relapse (some b-cell subtypes are prone to relapses literally10-15 years out)
 
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a_skeleton_03

<Banned>
29,948
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Pasteton_sl said:
i dont need to but i do think its underemphasized by patient's doctors sometimes. If you haven't already you should press your oncologist on the biopsy results and what they mean as far as treatment response, chance for recurrence/remission, and likelihood of long-term relapse (some b-cell subtypes are prone to relapses literally10-15 years out)
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I have a new sit down with him on Tuesday where I need him to write all those things down so the VA can take that and make a decision on whether they are going to 100% disable me and whether they think it's their fault due to the radiation I was exposed to in my field.

You did read I have both hodgkins and non-hodgkins right? It isn't a normal case in the slightest so we aren't sure about anything really. Just taking them individually and decided on R-CHOP due to their similarity in cell structure and some test studies he read about.

The path says NLPHL and DLBCL with it looking like de novo DLBCL.
 
Pasteton

Pasteton

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Ya sounds unusual. The nonhodgkins is generally more worrisome, especially considering your age. But when is the date of that path? Probably want to get another sample /opinion at some point unless they already had a lot of tissue to play with
 
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a_skeleton_03

<Banned>
29,948
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Pasteton_sl said:
Ya sounds unusual. The nonhodgkins is generally more worrisome, especially considering your age. But when is the date of that path? Probably want to get another sample /opinion at some point unless they already had a lot of tissue to play with
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They had a lot of tissue (Germans said they took out 20 nodes, softball size of tissue) and the path was just a month old. Americans took out two nodes that were 'clean' but look all shriveled and nasty. Might have been from the Vincristine and 30 days of like 100mg of Prednisone a day.
 
Woefully Inept

Woefully Inept

Karazhan Raider
9,388
37,485
To give those an honest answer about how some people are able to deal with this kind of stressful shit all the time.

1993 - Colon removed. I was 15 at this point.
1996 - My first tumor.
1998
2000

2002 - This is the BIG One. DVT with Pulmonary Embolism and a tumor that grew to a catastrophic size. I dodged 2 massive bullets here. The DVT/PE should have killed me. The tumor also should have killed me. It grew so large that I could not breath without excruciating pain. 50mg of Morphine later I could breath finally. I was given the "I'm sorry there's nothing we can do but make you comfortable." speech. That was certainly stressful. I'm only alive because the tumor basically spontaneously combusted and formed an abscess full of necrotic tissue to the tune of a 2 liters. They drained it and I could breath fine and the tumor wasn't pressing on anything anymore. I did have an anxiety attack on the way home from the hospital. And another one around midnight which netted me back in the hospital. Turns out narcotic withdrawals is a helluva thing. Sent me home with Xanax and some narcotic patches to ween me down.

2004
2006
2008
2010
2012
2013
2014

Aside from those that I commented on each of those years I had cancer related treatment, surgery/procedure, or extended hospital stay.

So how do some of us do it?
Practice
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Gravy

Gravy

Bronze Squire
4,918
455
Tred_sl said:
So how do some of us do it?
Practice
smile.png
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I can empathize here. So far none of it's been cancer related. I won't timeline it, it's just too much to go through.

My first major surgery at 16 in 1983.

My Big One was quintuple bypass in 2005. Near death episode in the ICU.

Minor big ones in the past few years with afib and vtach episodes.


I never really thought about it as practice, but yeah, unfortunately you do get used to some shit.
 
Woefully Inept

Woefully Inept

Karazhan Raider
9,388
37,485
NoodleAnus_sl said:
Sorry man... that's all I can say.

Shit.
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Why? I'm still alive and kicking. And contrary to all the shit that has happened I actually still enjoy my life. Fuckin' crazy I know but it's more than some folks are able to say. :p

What doesn't kill you makes you stronger as they say Gravy. Some days I want to kick whoever says that near me straight in the nuts. lol
 
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Troll_sl

shitlord
1,703
7
So, it's not cancer, but...

I think I'm going to have to talk to my GP about my moobs. I think it may actually be gynecomastia. I've lost a shit ton of weight, but they basically haven't decreased in size. Certainly not proportionally to everything else. And I have had moobs for basically as long as I can remember, even before I was obese.
 
Oldbased

Oldbased

> Than U
28,527
67,590
I saw something on tv the other night about a certain drug making men grow moobs it was one of those lawsuit commercials. I can't remember the name of the drug but I am pretty sure it started with a R
 
iannis

iannis

Musty Nester
31,351
17,659
I think the options are basically going to be either liposuction or gettin' swoll. You don't get to pick where your bodyfat goes and if it likes to concentrate in your tits it just likes to concentrate in your tits.

Maybe they have a pill for it but, me personally, there's no fucking way I'd trust it.
 
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Troll_sl

shitlord
1,703
7
Yeah. And unfortunately, putting muscle on the ol' upper body has only made them stick out that much more, and it doesn't actually do anything if it's gynecomastia and not just fat. Which is what's happened.
 
Pasteton

Pasteton

Blackwing Lair Raider
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Ya desmoid is basically like a giant scar out of control , tends to pull on everything around it, not sure if its technically considered a malignancy though. I know it has an annoying recurrence rate. Pretty rare
 
Pasteton

Pasteton

Blackwing Lair Raider
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Ya if you were obese at one point you may have had an estrogen oversupply, since adipose tissue does store it and tend to raise your estrogen levels. This probably resulted in your gynecomastia and so it's not going when you lost weight, since its glandular tissue there and not fat. Try squeezing your nipples and see if you can produce any type of liquidy substance, will further support true gynecomastia
 
Woefully Inept

Woefully Inept

Karazhan Raider
9,388
37,485
Pasteton_sl said:
Ya desmoid is basically like a giant scar out of control , tends to pull on everything around it, not sure if its technically considered a malignancy though. I know it has an annoying recurrence rate. Pretty rare
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Desmoids are classified as a Sarcoma. I have had several of these and the chemo I had this summer was for one.
 
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