What stage is your diverticulitis?Christ guys.
Suddenly I don't feel so shitty about my yearly diverticulitis flare up and degenerative arthritis in my lower spine due to years of slouching while playing video games. At least I'm not getting a Tesla coil shoved up my ass!
I don't think it really can be "staged". It's one of those things where after you have your first "attack" simply looms over your head as one of those things you can't predict. Doctors just don't seem capable of predicting what will cause it, and don't want to operate unless you have a high frequency of attacks. In my case, I'm not riddled with "divirtuculi" like some, but then again my gastro says he's seen people with many pockets that almost never have attacks, while others with very few have frequent ones.What stage is your diverticulitis?
Well, I have carcinophobia. My internist keeps trying to get me to go see a therapist about it, but besides never having a high opinion of therapists in general, I don't see how they're going to help me overcome my constant fear of getting cancer since it's not an irrational feeling. Grandma died of stomach cancer, grandfather died of pancreatic cancer, aunt died of lung cancer, and mother died of ovarian cancer. After seeing each one slowly rot away and slowly die in a morphine induced fugue, it's become my number one anxiety/nightmare.Yeah my spleen pain was being discussed as diverticulitis and I had a colonoscopy/endoscopy planned. While the doc was doing an ultrasound of the area to make sure he didn't need to make any weird turns he saw all the lymphoma tumors in my spleen.
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Maybe it's different in the states? What you're describing is diverticulosis, with attacks, diverticulitis, perhaps acute uncomplicated -If you have inflammation without any abscesses or perforation. We stage theacute (complicated) diverticulitis after Hinchey.I don't think it really can be "staged". It's one of those things where after you have your first "attack" simply looms over your head as one of those things you can't predict. Doctors just don't seem capable of predicting what will cause it, and don't want to operate unless you have a high frequency of attacks. In my case, I'm not riddled with "divirtuculi" like some, but then again my gastro says he's seen people with many pockets that almost never have attacks, while others with very few have frequent ones.
I've had two attacks in the last two years, neither of which required hospitalization thank god, just multiple oral antibiotics. Thankfully since losing the 20lbs I needed to in order to get a healthy BMI, cutting out a lot of carbs, and taking Miralax and a probiotic every day I haven't had an attack in almost a year. But who fucking knows if that's even the reason. The docs are pretty clueless as to what causes flare-ups in the first place, let alone what keeps them at bay besides possibly fiber. Bottom line any type of constipation becomes your mortal enemy.
But yeah, I'm only 42 and diverticuli don't "go away", so I'm not looking forward to what the future may hold. At this point I don't know how my spine will last another twenty years.
The way the gastro described it to me was diverticulosis is simply the condition of having the pockets in your colon, while diverticulitis is the "flare-up" when those pockets get infected or inflamed. All I know is my first flare-up presented itself as mild groin pain, severe intestinal bloating, and occasional "shooting" electrical like pain in the extreme lower left and right of my abdomen-- like right near my hips. It wasn't like any stomach ache I've had before and came on the heels of almost six month's worth of constipation. It wasn't particularly painful, just really uncomfortable. If the radiologist staged it (something I wasn't aware of until your link), he never communicated it to my gastro, or my gastro never communicated it to me. All I know is there was no perforation, though I did (and still do) have occasional blood spotting on toilet paper.Maybe it's different in the states? What you're describing is diverticulosis, with attacks, diverticulitis, perhaps acute uncomplicated -If you have inflammation without any abscesses or perforation. We stage theacute (complicated) diverticulitis after Hinchey.
LOL my doctors have always been baffled because I bleed like a stuck pig when I shit. I have more blood flow in one shit sometimes than my wife does from her period.though I did (and still do) have occasional blood spotting on toilet paper.
Believe it or not I've never had a colonoscopy, which is kind of weird because I've read it's standard practice after you're diagnosed with diverticulitis. My gastro just kinda shrugs and says it's not necessary, just kind of like how he shrugs when I say I occasionally crap blood. It's not very encouraging to be honest.. I was so worried that I paid out of pocket for a Cologuard test (shit in a box, mail it off, and they DNA test it for cancer). That being said, if I was bleeding s much as you describe, I don't think I'd be able to live without a clear answer. You'd think they'd be able to figure out where it's coming from..LOL my doctors have always been baffled because I bleed like a stuck pig when I shit. I have more blood flow in one shit sometimes than my wife does from her period.
Two colonoscopies later they say "must be hemorrhoids we can't see" like that is good enough. I gave up though. Sometimes it's when I have soft shits and sometimes hard just blood all in the bowl. When I stand up I need to have tissue available because it will drip out of my ass and onto the floor or inside my boxers or down my leg.
I gave up on trying to figure it out. It will kill me or not.
Yeah it's been happening for 11 years, some years it kind of goes away.Believe it or not I've never had a colonoscopy, which is kind of weird because I've read it's standard practice after you're diagnosed with diverticulitis. My gastro just kinda shrugs and says it's not necessary, just kind of like how he shrugs when I say I occasionally crap blood. It's not very encouraging to be honest.. I was so worried that I paid out of pocket for a Cologuard test (shit in a box, mail it off, and they DNA test it for cancer). That being said, if I was bleeding s much as you describe, I don't think I'd be able to live without a clear answer. You'd think they'd be able to figure out where it's coming from..
Everyone dies of cancer unless something else gets them first. It's not really a question of "if", it's a question of "when" and "where." What really turns people into carcinophobes aren't the stories of the people who die from cancer so much as the stories of people who find cancer early and manage to survive it. The doctor says "Soandso was lucky, he caught it early so we were able to eliminate it before it metastasized, etc, etc." Then we start thinking, well goddamn, I might get cancer, but I can probably survive it as long as I "catch it early." Then it turns us into these neurotic monsters trying to "beat cancer" by getting everything under the sun biopsied so we can catch the cancer early, until we have to switch to new doctors because our old doctors no longer take our concerns about cancer seriously enough. The whole time, our quality of life is severely suffering because instead of focusing on how we want to live, we are constantly worrying about how we are going to die.Well, I have carcinophobia. My internist keeps trying to get me to go see a therapist about it, but besides never having a high opinion of therapists in general, I don't see how they're going to help me overcome my constant fear of getting cancer since it's not an irrational feeling. Grandma died of stomach cancer, grandfather died of pancreatic cancer, aunt died of lung cancer, and mother died of ovarian cancer. After seeing each one slowly rot away and slowly die in a morphine induced fugue, it's become my number one anxiety/nightmare.
Thanks, this is all good advice. To clarify I don't really fear death itself, I fear the slow torturous suffering that comes with a Cancer death. The memories of watching my mom (and the others) slowly waste away, crying in pain for weeks, listening to that hoarse rasp like death rattle with each breath they drew.. The senile ranting that comes in the final week as the morphine levels block out all rational thought.. Those visions/memories just stick with you, and I fear being that person one day-- the ranting, rasping, 80lb cancer victim that shits himself and has to be carried to the toilet..Everyone dies of cancer unless something else gets them first. It's not really a question of "if", it's a question of "when" and "where." What really turns people into carcinophobes aren't the stories of the people who die from cancer so much as the stories of people who find cancer early and manage to survive it. The doctor says "Soandso was lucky, he caught it early so we were able to eliminate it before it metastasized, etc, etc." Then we start thinking, well goddamn, I might get cancer, but I can probably survive it as long as I "catch it early." Then it turns us into these neurotic monsters trying to "beat cancer" by getting everything under the sun biopsied so we can catch the cancer early, until we have to switch to new doctors because our old doctors no longer take our concerns about cancer seriously enough. The whole time, our quality of life is severely suffering because instead of focusing on how we want to live, we are constantly worrying about how we are going to die.
I don't know if it would help you, but what helped me is simply accepting that I was going to die and possibly suffer doing it. Accepting my own mortality- and I meanreallyaccepting the inevitability of my own death- freed me from worrying so much about how it was going to happen and what I could do to stop it. In fact, I discovered that almost all the "phobias" and neurotic behaviors I was experiencing all turned out to simply be manifestations of my attempts to control my own mortality and prevent my own death. Those fears won't go away until you embrace the fact that, ultimately, youcan'tprevent it.
I'm not saying ignore your family history or neglect reasonable screenings. Making a reasonable effort to catch potential problems early is a good idea, just like it's a good idea to look both ways before crossing an intersection. No one wants to get cancer, just like no one wants to die in a car crash. What I'm saying is let go of the idea that you can stop it- you can't. You can delay it, but even if you beat cancer, you're going to die in a car crash- or of heart failure- or during a random mugging- or quietly in your sleep at 100 years old. Shift your focus from how you die and put it back where it belongs- on how you are living. Not to be campy, but Lincoln had a great quote, "In the end, it's not the years of your life that count, it's the life of your years."