Health Problems

I guess I almost died Thursday afternoon. I laid down to take a nap and the next thing I remember is EMS trying to wake me and saying they were going to load me to take me to the hospital.

It was odd peaceful feeling. You think of dying as violent but it was just lay down and that was it. I came to them about to load me on the stretcher deal. Kind of was confused looking up at the ceiling. Not used to looking up at my ceiling while in bed with the light on. I already sleep with a baby monitor in my room. Apparently my parents got worried and couldn't wake me. Between my parents and the EMS it took them a good 10-15 minutes before the EMS got there and was about to load me up. Dunno what happened. Go to the doctor again tomorrow.

Nice to know 911 calls are answered in a town 100+ miles away. Mom gave them the adress and she said it's right next to the state park and the lady had no idea where that was.

Borzak Would be interested to know if they are still saying its damage from ADEM. Let us know.

Its definitely not normal to not be able to be woken, but its possible you were in a deep sleep (unlikely for a nap but if you were sleep-deprived, its possible). Only time that happened to me is when I fell off a bunk during deep sleep, I got KO'd into a mini-coma for an hour or so they transported me to another bed and talked over me and that didn't wake me up either. Could hear people and feel people but no consciousness or waking. No permanent injuries, thank you soft cabin wooden floorboards.

Borzak said:

I guess I almost died Thursday afternoon. I laid down to take a nap and the next thing I remember is EMS trying to wake me and saying they were going to load me to take me to the hospital.

It was odd peaceful feeling. You think of dying as violent but it was just lay down and that was it. I came to them about to load me on the stretcher deal. Kind of was confused looking up at the ceiling. Not used to looking up at my ceiling while in bed with the light on. I already sleep with a baby monitor in my room. Apparently my parents got worried and couldn't wake me. Between my parents and the EMS it took them a good 10-15 minutes before the EMS got there and was about to load me up. Dunno what happened. Go to the doctor again tomorrow.

Nice to know 911 calls are answered in a town 100+ miles away. Mom gave them the adress and she said it's right next to the state park and the lady had no idea where that was.

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Glad you pulled through!
I've said before the day I had all the embolisms and couldn't get enough oxygen to move how shockingly painless it was. Even when I was gasping for more air I just felt like I was tired and may fall back asleep. I never felt any pain including things that normally hurt like my feet and back. Everything was so silent to. Between that and the feeling I was 2 different people, one me and one the body I can totally see why people have such weird feelings of out of the body experiences and religious faith changes after such events.

It is something you can't really explain to people who have not had it happen and a feeling you will never forget. Total peace.

The EMT's checked my heart rate and oxygren level and it was OK. I use a heart rate monitor several times a day and the oxygren level is always 98 or so, so pretty normal.

I go in this afternoon for some checks on my adrenal glads as I have some other symptoms that might tie in with overproduction of adrenaline. Cushing's syndrome can come from too much corticosteroid use but from what I read that's normally over a period of time. Of course I've always said my issues started with 1,000mg of MethylPrednisone a day for 5 days and been a pretty straight line down since then.

My blood pressure is still pretty much the same it has been before, normally around 120/80 but my hear rate at times will wake me up at 140-150 and I take medication to keep it down. I've had my sonograms, echocardiograms, halter monitors and whatever else they call them and apparently nothing is wrong with my heart that cardiologist can find.

I have several symptoms that go with really bad anemia but my results aren't that bad. My hemoglobin and hemocrit are a little low but not what most doctors would even point out that you are anemic. The doctor today is supposed to do some more blood work on that end as well.

As far as ADEM goes it's turned into a wait and see what happens. No neurologist I've talked to or worked with think any problems I have are related to ADEM or MS, so it's basically wait and see if I have another relapse. Apparently a lot of people with ADEM get misdiagnosed with MS, and around 20% of people with ADEM will have a MRI that looks like MS and not the normal white out ADEM MRI. A guy I work with his wife was treated for MS for nearly 20 years. It never got better, it never got worse. She finally went to Baylor and they came up with something else and at least now she's off all MS stuff and doesn't have that worry.

Dr. "I think it's nice your mother is here".

I said "she's here because she drove and she's here in an effort to keep me from walking out if you say stupid stuff like MS, ADEM and type 1 diabetes are not autoimmune diseases".

Dr. "Ok I'll keep that in mind" as he moved away from me.

Borzak said:

Dr. "I think it's nice your mother is here".

I said "she's here because she drove and she's here in an effort to keep me from walking out if you say stupid stuff like MS, ADEM and type 1 diabetes are not autoimmune diseases".

Dr. "Ok I'll keep that in mind" as he moved away from me.

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Partially why I had to isolate and read books and the internet for several years straight, yes even in the car while driving places on the highway, the back roads, wherever. It was intensive.

Now I have at least some perspective and cannot be told something that is patently false. During my learning I realized that I had gained a certain perspective of appropriate diagnostic medicine, and that this perspective was not necessarily the universal perspective one might gain from doing the exact same reading.

Then I realized the same was likely true for medical school..."You can take a horse to water, but cant make it drink". In this case, "You can take a horse to water, but they all drink a little differently".

At that point I got scared, what my g-father told me at a young age that '9/10 doctors are not worth shit and you can wipe your ass with them' had become true-- and it was negatively impacting my life. Even a doctor with 25 years of specialist experience could only treat symptoms and not root cause and he was still under-diagnosing my symptoms and downplaying my health despite the labs saying otherwise (I'm a white male I can't get sick. Just crack the whip on my back a few times). Despite 3-4 other doctors telling him "You're wrong", these 2 super-experts were just hellbent on not even hearing me out as if I was going to taint the presentation somehow despite me mostly citing other doctors opinions. Its all ego with these guys. I learned that doctors hate other doctors, and if they didn't come up with it, they rush to discredit it.

Anyway this isn't about me. You seem like you have a good head on your shoulders Borzak regarding all this, and you're gonna cope just fine. I was younger with a lot less sense of humor about ivy league educated doctor (not kidding) knowing nothing about practicing appropriate diagnostic medicine. I had to criticize them for going differential so many fucking times that I just stopped going to doctors. I haven't been to a doctor in several years, and if I want to recheck anything up I'm likely to order the tests myself.

So weird. It is extremely hot so I got up at 5am and took out the trash and basic shit. Came back to shitpost Trump tweets but never really recovered from just doing basic things this morning. Just felt off. Sitting here I took used 3 different pule oximeters we had and all show 91-93% BO and 130-150 pulse. Normally I am 96+ and 70s pulse. This reminds me of when I had the embolisms.

It continued on longer than I cared for so I took a extra 50mg Metoprol, half a low dose asprin, extra 1/2 of a 7.5 warfarin and drank 2 Glucernas as those are loaded with vitamins and minerals and been back down to 70/80s heart rate the past hour.

Just curious if it is related to last nights events where I was super tired, had pain in my upper leg, laid down at 7pm and woke up at 10pm with massive cramping/charlie horses from my knee down to my toes. Would be a bit ironic if that 3 hours of playing 7 Days to Die caused a clot.

I've hit the most frustrating part of recovering after a large surgery like the one I had. My mind is ready to get back to "normal" but my body is like bitch please! go take a nap!
OK

My wife just got the results of her annual mammogram. She has a suspicious cyst that, according to that doctor, requires immediate attention.

Fuck, fuck, fuckity fuck.

Kuriin said:

Olebass, were you instructed to titrate your medications on your own? I'm just a little disturbed you would up your metop AND warfarin.

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Warfarin somewhat yes. That is only due to the fact my INR has been under desired level for 3 visits now ( over 5 weeks or so period ). Despite an increased 1/2 tablet a week my levels have been as low as 1.6 with no dietary/weight/activity changes to be thought of. This after a period of almost a year of levels within .1 of each other and not out of therapy range.
As for the metoprol, the last time I was at my heart doctor( different than the one that runs the bi weekly/monthly INR/PT tests ) he had moved me up to 100mg 2x daily. I had started off initially at 25 2x daily 2 years ago, then to 50 and recently 100. What I found is at 100 I was left often feeling weak, confused and my heart rate/BP low enough to cause concern. I went back to 50 2x a day and had been there. I wasn't concerned taking an extra 50 since that is the level he had put me at recently anyways, but turned out MOST of the time that level of it makes me completely unable to function. When my blood pressure gets down in the 100/50 range I just feel horrible. So the extra 50 only put me back to what he told me take, but found I normally don't do so well at that level.

It all happened again that next night after I posted it. SpO2 down in the low 90s/upper 80s and heart rate 130/140s. Since Sunday however the pain in my upper leg has mostly subsided and my SpO2 levels are back to 96-99 and heart rate when I am rested back down to 50/60s. BP is back up a bit to 110/60s. Overall back/leg pain excluded from spine I feel much better.

My wife's further testing shows she just has dense breast tissue. Her doctor said she has "busy boobs." There's nothing to be concerned about now, but mammograms every six months instead of a year is recommended. So glad!

lurkingdirk said:

My wife's further testing shows she just has dense breast tissue. Her doctor said she has "busy boobs." There's nothing to be concerned about now, but mammograms every six months instead of a year is recommended. So glad!

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Was some of the treatment playing with Dem titties some more???