Noodleface
A Mod Real Quick
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Health Problems
- Thread starter Kuriin
- Start date
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Guest, it's time once again for the massively important and exciting FoH Asshat Tournament!
Go here and give us your nominations!Who's been the biggest Asshat in the last year? Give us your worst ones!
Xarpolis
Life's a Dream
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Does Shelly have MS? I've taken Copaxone in the past for my own MS treatment. After a little over a year, I had an EXTREMELY bad experience with the medication that made me feel like I was dieing and had to go off of it. Copaxone is a sub cutaneous injection, meaning that it's injected directly under the skin as opposed to injection into muscle. I believe my bad side effect came as a result of my sub cu injection going into a vein instead of just under the fat. Anyway, that was a less than thrilling experience. Oh well.
Xarpolis
Life's a Dream
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The instructions said to use 7 different locations, and to change them every day. Right/Left shoulder, Right/Left thigh, Right/Left "love handles", belly.
Copaxone actually destroys fat tissue, so people whom always do it in their belly get thinner as a result, but they're doing damage to themselves in the process.
Copaxone actually destroys fat tissue, so people whom always do it in their belly get thinner as a result, but they're doing damage to themselves in the process.
Oldbased
> Than U
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Yes she has degenerative MS. They told us Copaxone would be like that, you can have a bad reaction or become allergic to it at anytime. Her first one was in the arm rest been in the belly. Nurse told us as long as it is 2 inches away from the belly button and 2 inches from the last site it was fine wherever on the stomach. The one in her arm left a bump and hurt so rest went to the tummy. She was using the autoinject 2 kit and had it dialed in pretty good for not going to deep.
I think when I posted that Noodle it was prior to her diagnosis, she had been for years just saying she didn't feel well and refused to work. Turns out she didn't feel well due to the MS and how far it had progressed. Her MRI's had always come back pretty much ok as well as chemistry panels in blood work, but once she had the spinal tap done it was it was all clear of the inflamations and chemical wackiness going on. Then targeted blood work and especially the nerve function test where it showed she was like 30% degraded over normal in nerve function that explained it all.
With that I have been trying to be supportive but it is hard to live with someone who can't really do anything and has nothing that I am not married to. It is also hard to toss someone out of my house whom I have lived with for 19 years as well. I'm willing to give it more time now that she is getting the medical help she needs to see if she can improve and at least get to disability if they can't.
This is what $4800 in a small box looks like! Thank god we don't have to pay that much.
Xarpolis
Life's a Dream
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That's not bad. In the past, I used to occasionally use very small vials of a medicine called H.P. Acthar Gel. Each vial was good for 5 days worth of treatment, and they cost around $8000 per vial. However, copay would take it down to $100, then copay assistance would drop that down to $10. But yeah, that shit was expensive. You had to draw your own gel using an empty syringe, then do an intramuscular injection with a 2" needle. Not fun.
Food for thought about the Acthar Gel. It's made with an extract from the pituitary gland in pigs. And there's a story about it's monumental price increase (it used to cost roughly $200 per vial before insurance). Kind of sickening that a pharmaceutical company can buy the rights to a very old medication for around $100,000.00, only to say it's a viable treatment to lots of other disorders (these claims don't need to be tested by the FDA due to the age of this medicine), and they now mass produce it and earn ~$2 billion a year in sales from it.
Very long article, but worth a read if you care -The Obscure Drug With a Growing Medicare Tab - ProPublica
Also, this website has incredible information on MS, from the narrators point of view. The author has suffered with MS for nearly 15 years, and I really enjoy his take on various things.
Wheelchair Kamikaze
Food for thought about the Acthar Gel. It's made with an extract from the pituitary gland in pigs. And there's a story about it's monumental price increase (it used to cost roughly $200 per vial before insurance). Kind of sickening that a pharmaceutical company can buy the rights to a very old medication for around $100,000.00, only to say it's a viable treatment to lots of other disorders (these claims don't need to be tested by the FDA due to the age of this medicine), and they now mass produce it and earn ~$2 billion a year in sales from it.
Very long article, but worth a read if you care -The Obscure Drug With a Growing Medicare Tab - ProPublica
Also, this website has incredible information on MS, from the narrators point of view. The author has suffered with MS for nearly 15 years, and I really enjoy his take on various things.
Wheelchair Kamikaze
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Woefully Inept
Karazhan Raider
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Congrats! The sense of relief after being given news like that can not be described.
And my ear is still fucked up. Went to an urgent care last night to get it looked at again and they didn't see much of an infection. Just some scarring from previous stuff. I've gotta make an appointment with an ENT. Not sure what the deal is. It feels like every other ear infection I've had in the recent past. 3 in the last 5 years. Enough is enough. Just clear the fuck up so I can move on with my life. lol
Oldbased
> Than U
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That is awesome to hear man.
Now just avoid gas stoves, logging trucks, roller coaster rides, airplanes and other assorted shit for awhile just to be sure.
Izo
Tranny Chaser
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Congratulations
What type of lymphoma was it? I don't recall your initial bw being indicative of lymphoma, other than the iron deficiency due to rectal bleeding. Did you ever post a diff count?
Thanks for sharing the good news, a_skeleton_03
Springbok
Karen
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Since you are being nice I took you off ignore!!Congratulations
What type of lymphoma was it? I don't recall your initial bw being indicative of lymphoma, other than the iron deficiency due to rectal bleeding. Did you ever post a diff count?
Thanks for sharing the good news, a_skeleton_03
I had hybrid composite of nodular lymphocyte predominant Hodgkin's (NLPHL) and diffuse large B-cll non-Hodgkin's (DLBCL) which was odd and actually stumped my doctors a bit since I guess it's an indolent and agressive at the same time. My German doctors said they must have screwed up when they saw it, threw their hands up and said to figure it out in America since I told them I was already going there. I am sure they would have been okay if I would have stayed, they suggested the same treatment regimen (R-CHOP).
The tough part is still ahead of me. Trying to get the military to accept responsibility and change my disability rating so that future scans will be on their dime.
Everyone else thanks for the congratulations, talk about a huge step back to normalcy. I actually can't wait to go to work soon!
Gavinmad
Mr. Poopybutthole
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How did you know he was being nice unless you never had him on ignore in the first place you fucking liar.
Because when you ignore someone every time they post it shows two options, view post or remove user from ignore. I figured that since it was a post or two behind mine it would be fairly nice. LIAR
Crone
Bronze Baronet of the Realm
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Grats! That was a tough as shit expansion + DLC to beat, but you did it. Got all the achievements, and now you can chill for a while, as all the scrubs try and catch up.
Great news, glad you beat it.
Hope the rest of you struggling with some form of disease or another have the same results.
Fuck cancer