Parent Thread

Noodleface · Mar 8, 2017

Sorry for turning this into the Noodle blog.

Over the last couple weeks his speech has really exploded. He says "Daddy", "Momma" directly at us. Sometimes if he sees me in the window when I get home I can hear him screaming "DADDY" from inside and I have to sort of stop for a minute and just let it wash over me. He's also saying "no" to stuff finally, so we can ask him if he wants to eat X, Y, or Z and actually get a solid response from him. He hasn't learned "yes" yet, but he'll say "more" as his way of saying "yes" - for instance, he'll point at food he wants and say "more." He knows all of the letters of the alphabet and say at least half of them, with probably an additional 25% he just says the sound it makes. He knows the numbers, but they're too hard to say.

I taught him to say "boobie" and then he touches my wife's boobs. I felt that was a personal victory.

He also howls like a dog when he wants to talk to the dog. Very affectionate now with hugs and kisses.

Like a different kid now. I know people said it would happen very soon, but when you're living it, it definitely feels like it's far away.

chaos · Mar 8, 2017

That's great news. The speech thing still hasn't ended for my almost 5 year old, but every now and then she says something and I think "wtf she has come so far". Those moments are pretty great.

lurkingdirk · Mar 8, 2017

Dude, I'm really glad for you. Has to feel great to see progress being made.

Noodleface said:
I taught him to say "boobie" and then he touches my wife's boobs. I felt that was a personal victory.

Cad · Mar 8, 2017

Noodleface said:
Sorry for turning this into the Noodle blog.

Over the last couple weeks his speech has really exploded. He says "Daddy", "Momma" directly at us. Sometimes if he sees me in the window when I get home I can hear him screaming "DADDY" from inside and I have to sort of stop for a minute and just let it wash over me. He's also saying "no" to stuff finally, so we can ask him if he wants to eat X, Y, or Z and actually get a solid response from him. He hasn't learned "yes" yet, but he'll say "more" as his way of saying "yes" - for instance, he'll point at food he wants and say "more." He knows all of the letters of the alphabet and say at least half of them, with probably an additional 25% he just says the sound it makes. He knows the numbers, but they're too hard to say.

I taught him to say "boobie" and then he touches my wife's boobs. I felt that was a personal victory.

He also howls like a dog when he wants to talk to the dog. Very affectionate now with hugs and kisses.

Like a different kid now. I know people said it would happen very soon, but when you're living it, it definitely feels like it's far away.

Excellent news sir!

Adebisi · Mar 10, 2017

This was me working from home

lurkingdirk · Mar 10, 2017

Adebisi said:
This was me working from home

Holy crap did that make me laugh. I can relate, man. I was once on a telephone interview with NPR and my 3 year old son wandered in to the room a cut a huge fart. I have no idea if the interviewer heard it, but I had quite a difficult time continuing to sound professional.

Noodleface · Mar 10, 2017

That was fuckin great

ToeMissile · Mar 11, 2017

Wife showed me that vid today. If you look closer, seems the wife has her pants down. Probably in the bathroom and the kids got loose.

The little lady is 5 weeks today. Haven't weighed her lately but definitely around 11-12 lbs. @ her 2 week appt she was 40th percentile for weight and 99th/off the chart for height. Everything going perfect health/development wise. Also slept almost 6 hours straight two nights this week.

There's a pretty good chance she only has one kidney though, which sucks but not a big deal really. The wife had a hard time with it for a while. We have an appointment w/ a specialist next week to do an in depth look to see if the missing kidney developed but just didn't move into place.

Qerero · Mar 12, 2017

My son, almost 2 1/2, also has a serious speech delay, he only says a handful of words appropriately. He started speech therapy last week, and even after just one session and my wife and I making an extra effort based on their advice, I feel like it's helping a bit. He's pointing at stuff around more and seems at least to be grasping on the idea that there is a name for everything.

That said, we've become pretty worried that the speech thing is a symptom of autism. I started researching autism a bit more and I think he has several of the other markers for it beyond just speech, although there are several he doesn't have as well. He has an assessment early next month, which we had gotten the referral for earlier when we weren't worried at all but figured we should just check just in case. Now we are so anxious about it that the remaining month we have to wait seems like an eternity.

Noodleface · Mar 12, 2017

You're basically going through what I did. Good luck man!!

Qerero · Mar 13, 2017

Thanks. It's so confusing looking this stuff up. I'm not really a proxy-hypochondriac with my son, but from the research I've done I'd be pretty surprised if he doesn't get diagnosed on the spectrum in some form. That said, the list of signs and symptoms is often pretty different from the professional medical sites to the unofficial parent blog/message board/youtube etc. The professional symptom lists always include the more severe-sounding stuff (lack of emotional expression and/or eye contact, lack of interest in other kids, self-injury, don't respond to name) and give me the impression that a best-case scenario after a diagnosis would be a basic, but still impaired, ability to live independently and have a job. The parent posts and videos often seem to be "my kid is loving and smiles all the time, eye contact is pretty good, is doing decent in mainstream school". I know that one particular kid will very rarely have all the symptoms at once and the spectrum has a wide range, but I can't get any real sense of what a diagnosis might mean. I guess pretty much everything between "totally independent but socially awkward sometimes" and "needs care for the rest of his life and will never have a job/own home/relationship" is in play. Obviously I'd like to think that if he were on the spectrum my kid would be closer to the former than the latter, but I have no idea if they can tell that at his age.

lurkingdirk · Mar 13, 2017

Hey, parents with autistic kids - how pissed would you be if your very close friends tried to say something to you about your 11 year old autistic son's very consistent absolutely inexcusable behaviour becase your friends felt like you were in deep denial about what your son was and felt you have done nothing to address his needs?

Seriously. We have friends that can't be anywhere with their oldest son because he will make the entire situation and everyone involved miserable. He displays all the classic signs of autism, all the way down to an affected speech pattern. They refuse to acknowledge that he is anything but a boisterous boy.

We want to help them, but I think if we say anything about it they will explode at us because of the level of denial.

Thoughts?

Cad · Mar 13, 2017

lurkingdirk said:
Hey, parents with autistic kids - how pissed would you be if your very close friends tried to say something to you about your 11 year old autistic son's very consistent absolutely inexcusable behaviour becase your friends felt like you were in deep denial about what your son was and felt you have done nothing to address his needs?

Seriously. We have friends that can't be anywhere with their oldest son because he will make the entire situation and everyone involved miserable. He displays all the classic signs of autism, all the way down to an affected speech pattern. They refuse to acknowledge that he is anything but a boisterous boy.

We want to help them, but I think if we say anything about it they will explode at us because of the level of denial.

Thoughts?

I'd stay about 1000 feet away from that situation. Let me tell you how "parenting advice" to anybody usually goes down:

images?q=tbn:ANd9GcSt3gsQnVmP6TlK-5ODi-S7Ompu9Ywl6TrtV7DGzjS9IW_uRYBM

lurkingdirk · Mar 13, 2017

Cad said:
I'd stay about 1000 feet away from that situation. Let me tell you how "parenting advice" to anybody usually goes down:

View attachment 126018

I understand that. These are people we are VERY close to, and they are isolating themselves from the world and I'm worried for their future. A little "fuck you" in order to serve a greater purpose is worth it to me.

chaos · Mar 13, 2017

The bIG thing that stuck out to us was our daughters speech. When getting her screened as a matter of course, we ran across a checklist of behaviors that were possible signs of autism. I was adamant that she1 didn't have it, because what I thought of as autism was from movies and stuff. But the truth is more nuanced, and reading that checklist was like reading a description someone had written about my daughter's behavior. So we did the screening. I'm not sure what I would have thought if someone had tried to convince me that she was autistic before that. Disagreed, for sure. It depends on what kind of people they are.

Qerero · Mar 13, 2017

Yeah I am really happy that my wife and I are both on the same page and want to get him screened so we can get him whatever help he needs, whether it just be speech or anything beyond that. If she were in total denial it would be way worse. The speech delay is what triggered our concern about autism as well, our pediatrician mentioned it to us directly at his 2-year checkup for that reason. Without the speech delay we never noticed anything that strange, he had hit all his early milestones outside of words by 18 months. He doesn't have a number of the classic symptoms - he has no problem with eye contact that I can tell, looks when you point or notice something, he's always very interested in other kids and likes running around with them, responds to his name, etc. But he also lines up cars all the time, does the arm flapping when he's excited, some minor repetitive stuff a few minutes at a time, and when we put him in some community classes to try to socialize him (he never went to daycare) he just seemed...different? In a way that could just be shyness, but he doesn't follow along with what the others are doing really, even when it's something that most all kids would want to do - he has no interest in getting a sticker from the teacher at the end of class, for example, when all the other kids run up together to get one.

Now I feel bad for him, my wife and I are over-analyzing every move he makes, lol. OMFG HE JUST TURNED IN A CIRCLE A COUPLE OF TIMES

Adebisi · Mar 15, 2017

If allowed my daughter will play on the computer all day. A true basement dweller in the making.

Are there parental controls I can install where I can remotely limit access by just using my phone. So I can do it on the fly? Not just set up pre determined time limits

Cad · Mar 15, 2017

Adebisi said:
If allowed my daughter will play on the computer all day. A true basement dweller in the making.

Are there parental controls I can install where I can remotely limit access by just using my phone. So I can do it on the fly? Not just set up pre determined time limits

Your phone have a web browser?

Just log into the router and kill access anytime

Adebisi · Mar 15, 2017

Good call

Crone · Mar 16, 2017

Cad said:
Your phone have a web browser?

Just log into the router and kill access anytime

I believe some routers allow you setup black/white lists on timers, so if it's a certain device she's always connecting on you can restict the network via Mac address as well.

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